Pnemonia and another funny.

His cold turned into pneumonia and his right lung collapsed. So, they put him on C-pap which is just high flow oxygen. It helped to keep his lung inflated. And they also positioned him so that his lungs would be able to open up more so that they wouldn’t be constricted. He gave us scare after scare. His pulse ox would drop to about 37 then go back up again and the cough was horrible. He would no sooner get to sleep when he would have another attack and get woke back up again. This is one of the few times that I seen him crabby. As in he cried all the time. And there was nothing that I could do to help him. I couldn’t really hold him that much because he needed to be laying so he could breath better. We had many many talks about fighting this thing. He would just look at me as if to say I got this just give me a few days. They suctioned him a lot and oh man the stuff that came out of him. They deep suctioned him and got all of the secrections out and he was better for a little while till they built back up again. Let me say that Johnathan also had chronic lung disease because he was on the ventilator for so long. So, when he got hit with a cold he got hit bad that is why it turned into pneumonia. I remember being very upset because well, he was in a hospital and you aren’t supposed to catch anything in the hospital. You were in there to get better not get sick. But, you know, the hospital is where all the germs are and with his lying and not moving too much didn’t help either. We just prayed and knew God would see him through it.

God and prayers from many prayer warriors helped him heal and get through pneumonia. The cough lingered for a while longer, but, soon that was gone also.

During this time they were talking about surgery again for his bowels. He wasn’t digesting, his fistula was still leaking and they couldn’t figure out what was going on. They figured a better way to find out what was going on was to go straight to the source and have a look at it. I really didn’t want him to have surgery again, but, I was all for figuring out what was going on, and it did seem that that was the best solution, because if they go in and look maybe they can fix it while they are in there.

I remember one of my grossest memories. But, really funny. His fistula was covered by an ostomy bag. Well, I was holding JT and we were just a talking away when I felt like my shirt was soaked. I figured he peed on me. Oh no! His ostomy bag had came off. Let me tell ya, that stuff doesn’t smell too great. I thought I had broke something on him I was so scared. But, nope, he pooped on me. He finally pooped on me. Ok, it was out of the ostomy bag but, hey I got that memory too. We were all about making memories and that was one.

The ride home, now, that wasn’t so funny, but, me and Stacey laughed so hard with the windows down every now and then until we got home.

Joyous Frustrated moment.

They had tired once in Cincinnati to take him off of the vent. He was on C-pap which is basically oxygen with some pressure. But, he didn’t tolerate it well. So, they put him back on the vent.

Well, he came back to Dayton and it was just mostly watching him grow. I spent Thanksgiving with him and we had a blast. I found out after thanksgiving that they were going to make plans to reconnect his bowel. He had a double barrel so, it was just a matter of reconnecting it. And from the surgeons mouth not mine just stitch and let go. They would run water through it and making sure nothing leaked. Then we would wait for bowel sounds and his first bowel movement. That is when we would really know if everything was fixed or not.


But, before that happened miracle of all miracles happened. At 7:15, November 27, 2006, JT pulled his vent out. He was breathing on his own. No nose cannulas. No oxygen. Just breathing like you and me. He decided that he wanted it no more. He was on the vent for 13 weeks, to the day except for the few hours on C-pap in Cincinnati. And it was another special day. It didn’t dawn on me until later that day that it was his original due date. I rushed up there to see him and seen my baby’s face. It was awesome. I was so afraid he wasn’t breathing right. I kept asking Patty the nurse if she was sure that he was ok. I mean I was totally exstatic that he was off but, when you get used to one thing and then something else happens. (which happens a lot in the NICU). It just scares you. I was holding him and he had a Brady which is where his heart rate goes down. Come to find out I had his head tucked to far in and had to relax and let his head fall back. That was scary. I remember I had Mikayla up there with me and we had the greatest time. We gave JT all kinds of kisses. She could touch him actually touch him with out me feeling like she would rip his vent out. She was just two at the time. Now, I was still worried about the IV’s because he had a lot of them. But, we had fun with the kisses and we read him a whole bunch of books and he just interacted with us and it was just awesome is the only word to describe it. I never thought I would see the day that think would come out and he would be breathing on his own.

I found out also that he would be having eye surgery the next day. He had ROP which is Retinopathy of Prematurity. This is where the retinas are separating from the back of the eye. It is seen mostly in preemies that have been on oxygen long term. He would have to be vented again. He would also have a paralytic again they didn’t want him to be able to move his eyes. This surgery was a laser surgery but, surgery none the less. He wouldn’t be off the vent but basically 24 hours when he would have to go back on again. I was scared that he would go on it and not come back off. We had freedom from one thing and I didn’t want to loose it. There were a lot of tears that day. Happy rejoicing tears, frustrated tears and scared tears. I went home and just prayed. Prayed that everything would turn out alright, and that he would come off the vent in no time.